Website Terms of Use
National MSA Research
Rare Neurological Disease Research Ltd
ABN: 55 681 229 032
1. Introduction
Welcome to the National MSA Research website.
This website is operated by Rare Neurological Disease Research Ltd, trading as National MSA Research, an Australian registered charity dedicated to raising awareness and supporting research into Multiple System Atrophy (MSA).
By accessing or using this website, you agree to these Terms of Use to the extent permitted by applicable law.
If you do not agree with these terms, please discontinue using the website.
2. Purpose of This Website
The National MSA Research website provides information about:
- Multiple System Atrophy and related awareness initiatives.
- Our organisation, mission and charitable activities.
- Research initiatives and collaboration opportunities.
- Fundraising campaigns and events.
- Donations and legacy funds.
- Volunteering and community participation.
- Partnerships and sponsorship opportunities.
- Other activities connected with our charitable objectives.
We aim to provide information that is accurate, relevant and accessible. However, information may change, and we cannot guarantee that all content will always be complete or current.
3. Medical Information Disclaimer
Information relating to Multiple System Atrophy and other medical or health topics is provided for general educational and awareness purposes only.
The content on this website is not intended to replace professional medical advice, diagnosis or treatment.
National MSA Research does not provide individual medical advice or clinical services through this website.
Visitors should consult appropriately qualified healthcare professionals regarding medical concerns, symptoms, diagnosis and treatment options.
Never disregard professional medical advice or delay seeking medical assistance because of information obtained from this website.
4. Research Information
Information about medical research, scientific developments and potential treatments is provided for general information purposes.
Research findings may be preliminary, subject to further investigation or revised as additional evidence becomes available.
References to research objectives, proposed projects or future developments do not guarantee particular outcomes, funding decisions, treatments or medical advancements.
5. Donations and Fundraising
National MSA Research may provide opportunities to make donations, support legacy funds and contribute to fundraising campaigns through this website.
Donations may be processed using approved third-party payment providers.
By making a donation, you acknowledge that:
- Donation transactions may be subject to the terms and privacy arrangements of the relevant payment provider.
- Donation records and receipts may be issued electronically.
- Donations allocated to particular funds or campaigns will be managed in accordance with the organisation’s applicable charitable purposes and any stated donation conditions.
- Not every payment, purchase or fundraising contribution will necessarily qualify as a tax-deductible gift.
Tax deductibility depends on applicable Australian taxation requirements, including the nature of the contribution and any benefits received.
If you believe a donation has been made in error or wish to enquire about a refund, please contact National MSA Research. Requests will be assessed according to the circumstances and applicable law.
Nothing in these terms excludes rights that cannot lawfully be excluded.
6. Fundraising Events and Activities
National MSA Research may advertise, organise or support fundraising events and activities.
Certain events may have separate terms and conditions relating to ticket purchases, attendance, refunds, participation, competitions, raffles or other activities.
Where separate event-specific terms apply, they will be made available through the relevant event or registration process.
Participation in an event may require acceptance of those additional conditions.
7. Website Forms and Enquiries
Our website may provide forms for contacting National MSA Research, subscribing to communications, volunteering, sponsorship enquiries and other purposes.
By submitting information through these forms, you agree to provide information that is accurate to the best of your knowledge and that you are authorised to provide.
Submitting an enquiry, application or expression of interest does not guarantee acceptance, approval, appointment, funding or participation.
Personal information submitted through our website will be handled in accordance with our Privacy Policy and applicable legal requirements.
8. Intellectual Property
Unless otherwise stated, content created and owned by National MSA Research, including original text, graphics, logos, branding and other materials, is protected by applicable intellectual property laws.
You may access and use website content for lawful personal, educational and informational purposes, subject to any applicable third-party rights.
You must not reproduce, modify, distribute or commercially exploit protected material without appropriate permission, except where permitted by law.
Third-party materials remain the property of their respective owners.
The National MSA Research name, associated branding and logos must not be used to imply endorsement, authorisation or affiliation without permission.
9. External Links and Third-Party Services
Our website may contain links to external websites operated by research institutions, healthcare organisations, fundraising platforms, payment providers and other third parties.
These links are provided for convenience and information.
National MSA Research does not control the operation, content, security or privacy practices of independently operated third-party websites.
Visitors should review the terms and privacy policies of any external service they choose to use.
The inclusion of an external link does not necessarily imply endorsement of all content, products or services provided by that organisation.
10. Acceptable Website Use
Visitors agree not to use this website in a manner that:
- Violates applicable laws or regulations.
- Interferes with website functionality, security or availability.
- Attempts to gain unauthorised access to accounts, systems or information.
- Introduces malicious software or harmful content.
- Misrepresents an association with National MSA Research.
- Infringes the rights of other individuals or organisations.
- Uses our name or branding to conduct unauthorised fundraising or solicit donations.
Fundraising activities undertaken in the name of National MSA Research require appropriate organisational approval.
11. Website Availability and Changes
We aim to maintain a functional and accessible website.
However, the website may occasionally be unavailable due to maintenance, technical issues, hosting interruptions or other circumstances.
We may modify, update, replace or remove website content and features as our organisation develops.
Where appropriate, we will take reasonable steps to minimise disruption.
12. Limitation of Liability
National MSA Research takes reasonable care when preparing and maintaining website information.
However, we do not guarantee that all information is free from errors, that every external link will remain available, or that access to the website will be uninterrupted.
To the extent permitted by law, National MSA Research is not responsible for losses arising solely from reliance on general informational content or the independent operation of third-party websites and services.
Nothing in these Terms of Use excludes, restricts or modifies any rights, guarantees or remedies that cannot lawfully be excluded, including rights under the Australian Consumer Law where applicable.
13. Privacy
Protecting personal information is important to National MSA Research.
Information about the collection, use, storage and disclosure of personal information is available in our Privacy Policy.
We encourage visitors to review that policy before submitting personal information.
14. Changes to These Terms
National MSA Research may update these Terms of Use to reflect changes in our operations, website services or applicable legal requirements.
Updated terms will be published on this page with an appropriate revision date.
Any changes affecting existing transactions or agreements will be managed in accordance with applicable law and the relevant transaction-specific conditions.
15. Governing Law
These Terms of Use are governed by applicable Australian laws.
Nothing in these terms limits any statutory rights or protections available to website visitors.
16. Contact Information
For questions about these Terms of Use, please contact:
National MSA Research
Rare Neurological Disease Research Ltd
ABN: 55 681 229 032
Email: info@nationalmsaresearch.org.au
Website: www.nationalmsaresearch.org.au
Last updated: [Insert approval date]