Caring for Someone With MSA
Information and Support for Families, Partners and Carers
Supporting someone living with Multiple System Atrophy can involve significant practical and emotional responsibilities.
As the condition progresses, a person’s needs may change. Family members and carers may become involved in attending appointments, coordinating healthcare, helping with daily activities or organising appropriate support services.
Every caring situation is different, and the level of assistance required will depend on the individual.
Working With the Healthcare Team
Where the person living with MSA wishes, carers can play a valuable role in communicating with healthcare professionals.
It may help to keep an up-to-date medication list, record significant changes in symptoms and prepare questions before appointments.
Healthcare professionals can also advise on practical matters such as mobility, swallowing, communication, bladder management and home safety.
Planning for Changing Needs
Some families find it helpful to discuss future support arrangements before they become urgent.
An occupational therapist, social worker or other qualified professional may be able to assist with identifying appropriate equipment, home modifications or community services.
It is important to involve the person living with MSA in decisions about their care and preferences wherever possible.
Looking After Yourself as a Carer
Caring for someone with a progressive condition can be physically and emotionally demanding.
Carers may benefit from having people they can talk to, access to respite arrangements where available, and opportunities to maintain their own health and wellbeing.
Asking for practical assistance or professional support can be an important part of maintaining a sustainable caring arrangement.
Finding Further Support
National MSA Research provides information about organisations and services that may be relevant to families and carers.
Our Australian Support Services and Patient & Family Toolkit pages provide starting points for finding information, preparing for appointments and exploring available assistance.
Explore Support Services and the Patient & Family Toolkit
National MSA Research provides general information and resources, not individual medical advice or clinical care.