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About Us

Our Mission

National MSA Research is committed to funding vital research into Multiple System Atrophy. We're also working to improve brain donation access across Australia by collaborating with medical researchers and Members of Parliament. Our goal is to establish more brain banks, either through new facilities in each state or by expanding the reach of existing centers nationwide.

 

National MSA Research was founded on October 2, 2024, following the 2022 diagnosis of Director Kieran's father with Multiple System Atrophy (MSA). The diagnosis came as a shock to the family, who were previously unaware of the condition. Initial research revealed limited information regarding effective treatments or a cure.

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In response to the scarcity of MSA support services in Australia, Kieran and two other directors founded National MSA Research. Our mission is twofold: to raise funds for crucial research while increasing public awareness of MSA.

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National MSA Research is a registered non-profit charity with the Australian Charities and Not-for-profits Commission (ACNC) and holds Deductible Gift Recipient (DGR) status with the Australian Taxation Office (ATO).​

Our team is committed to fund research to support MSA patients and their families.

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Kieran Klep (Director)

Kieran is a Manager at a major supermarket chain. And is one of the Founding members of National MSA Research, This came about as Kieran's late Father was diagnosed in 2022, There seems to be not much available online for Australians, This charity is dedicated to push for more research. ​ Kieran has an background of Multimedia and IT knowledge previously working for the Catholic Archdiocese of Melbourne and NEP (Formally Global TV)

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Roshan Mathew Sinnan (Director)

Roshan (Rosh) was approached and appointed to the Board in September 2024 to aid with the formation of the charity. Rosh brings a diverse range of experience from a range of sectors including Accounting, Tax, Education and Teaching. Rosh has volunteered over the years for various charitable endeavours including the Australian Red Cross blood donation, fund raising for mental health awareness, and providing meals to the homelessness during his time at University. Rosh is a Tax Manager working with high wealth private groups and holds a Bachelor of Commerce from Deakin University with majors in Accounting and Finance. He is also a private piano teacher registered with the Victoria Music Teachers Association that teaches following the Australian Music Examination Board (AMEB) syllabus.

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Brendan Noll (Director)

Brendan Noll has worked in the health industry for over 10 years and was appointed to the Board in September 2024 to assist in forming a charity focusing on Multiple System Atrophy. Brendan Has a Bachelor of Science degree in Microbiology, Immunology, and Infection and is continuing to further his studies at the University of New England, where he is focused on a Bachelor of Pharmacy (Honours). Brendan has volunteered for various Health organisations, namely Alfred Health – Caulfield and Alfred Hospital. During this time, he was responsible for assisting Acquired brain injury patients, helping them to live as normal lives as possible, whether it be through playing games or assisting them with day-to-day tasks. Brendan also found a keen interest in helping young adults (15–25-year-olds) tackle the ongoing battle between drugs and alcohol. Helping to equip them with the necessary skill sets so they could function and live on their own healthily and safely.

© 2024 Rare Neurological Disease Research is trading as National MSA Research

ABN: 55 681 229 032

ACN: 681 229 032

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info@nationalmsaresearch.org.au

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